William is the first child of Mrs Osborne and her partner Stuart Jones, 43.

The couple is living in hospital accommodation to be close to their baby.

After the emergency caesarean section, William was able to go home at the age of 10 days.

However, his parents noticed that he was very sleepy and had difficulty drinking, so they took him to the hospital again three weeks later, where the disease was diagnosed.

Ms Osborne added that a transplant was the “only option” for her son.

“We really miss him, we had a few weeks at home and he was a real joy,” she added.

“He’s funny and has these little frowns and expressions – he’s cheeky. We want him back home.”

“I can’t hold him for long and it’s heartbreaking. We are terrified that his condition could worsen at any time.”

“This is the only way to save his life.

“We could wait a year, two years or more. He may not make it to the transplant, but we’re going to keep going – he needs a transplant,” she said.

According to NHSBT, there are currently more than 7,000 people in the UK waiting for an organ transplant, including 250 children.

Of these, almost 300 require a heart transplant, including about 38 children.

Ms Scales said: “We urge parents to think and talk about organ donation for themselves and their families today.

“Your decision could help save lives.”